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Facing Death and Bereavement Conference - supporting people who have dementia.

Wednesday 16th October 2019

10.00am - 4.00pm

John Parry, Bognor Regis Campus

Information giving and networking day for those working with people who have dementia, facing death or bereavement.

Morning Keynote Speaker

Nancy J Preston PhD BSc (Hons) RGN

Professor of Supportive and Palliative Care

Nancy is a Professor of Supportive and Palliative Care at the International Observatory on End of Life Care at Lancaster University where she is also the programme director for Postgraduate Studies.
She gained her PhD from the Institute of Cancer Research in London. Her main area of interest is service delivery models for palliative care (supportive care for people in their last year of life) including how to integrate such care into care homes and acute hospital services. She is also interested in symptom management and has conducted some Cochrane reviews on this. In addition, she has developed research in the clinical management of complex symptoms. She has expertise in the development and running of clinical trials involving patients with end of life needs, which have run at national and international levels through grants from the European Union.


Morning Speaker

Sarah Russell 

Dementia UK and Admiral Nurse

Title: Dementia UK and Admiral Nurses: How and what they do in supporting people
living and dying with dementia.

Dr Sarah Russell, RGN, is an Admiral Practice and Professional Development Facilitator at the national charity Dementia UK. Sarah has worked in hospice and palliative care for over 20 years as a nurse, educator, researcher and manager. Her doctoral research was in advance care planning and she is co-author of End of Life Care for people with Dementia: A person centred approach published by Jessica Kingsley Publications. Sarah has been a family carer for 16 years, 8 of those for her mother who lives with Alzheimer’s.


Morning Workshops

Sarah Burnard 
Namaste care at home: anticipatory grief
Sarah has over 40 years’ experience of working in the healthcare sector, both as a clinician and as a General Manager. She has worked in many multi-agency settings, with both clinicians and managers, including with the NHS, Social Services, the Voluntary Sector and the Police.

She has a background in economics and finance, and has extensive experience of developing public health policy.

Sarah has worked in the hospice sector for over ten years, specialising in community engagement and public participation, and has significant experience of working with hard to reach groups.
She is a founding Trustee of Hope for Home, and has a special interest in supporting people with dementia and their carers living at home.

Sarah Maclaughlin
Soul Midwifery
Soul midwives draw on a traditional skills, now largely forgotten, applying them to our modern world to lovingly ease the passage of the dying, and to work toward supporting that their death is a dignified and peaceful experience. We work alongside all other caring professionals who work with the dying but fill a gap that may be missing.

We work as non-denominational, multifaith practitioners who honour the person’s beliefs whatever they might or might not be. We are there for each dying person to listen and provide gentle therapeutic techniques to ensure compassionate care at all times. We are able to provide comfort, continuous support and reassurance to the dying person.

Sarah has been interested in death and dying for most of her career in working with older people in many capacities; now working as a Community Psychiatric Nurse with the Living Well with Dementia Team. She has been involved with Soul Midwifery for the last 7 years; training with Felicity Warner the founder of the Soul Midwifery.

She conducts training with groups who are interested in incorporating Soul Midwifery in their work with people with dementia, seeing that supporting the dying process is an organic part of caring for this population.

Paul Morris and Francis Usher Smith
Supporting the person’s journey from diagnosis to death. What considerations they may have regarding their care needs throughout this journey.

Paul Morris: Dementia Clinical Nurse Specialist at St Richards Hospital. Over 30 years’ experience working with people with dementia in psychiatric and acute hospitals, from diagnosis to end of life.

Frances Usher-Smith: Dementia Matron for Western Sussex Hospitals Foundation Trust. 30 years’ experience working in an acute hospital specialising in elderly care, practice development and leadership.

Tim Wilkins (Alzheimer’s Society)
Is there a right time to discuss end of life plans with people affected by dementia?

Come and meet people affected by dementia and representatives from Alzheimer’s Society.

Tim Wilkins, Alzheimer’s Society Service User Involvement Officer in West Sussex

I have worked for the Society since 2010, during that time I have met a number of people affected by dementia who want to discuss end of life plans, however, I have also met a number of people who aren’t so keen...


Afternoon Keynote Speaker

Gayle Hnery PhD BSc (Hons) RGN

Registered Adult Nurse, experienced in Care Homes and Community Palliative Care


I have been a Registered Adult Nurse since 2000 with experience in Care Homes and Community Palliative both in Scotland and Australia (2007-2014). I have taught undergraduate Nursing students at Wollongong University on a variety of subjects,
I participated in a research project while in Australia relating to recognising end of life for Dementia patients (REACH out in Dementia) as a project liaison officer and had work published as a result of this as well as developing a care plan subsequently utilised by several aged care organisations in Australia (NSW and interest from Queensland). I was a Clinical Nurse Educator for community nurses in the Illawarra and Shoalhaven (NSW) then an Education Manager for and an aged care organisation (Warrigal covering NSW and ACT) briefly prior to my return to Scotland in 2014.

Since my return to Scotland I have been employed as a Care Home Liaison Nurse in East Dunbartonshire and more recently as an Advanced Nurse Practitioner for Care Homes, having undertaken further study to achieve this. I developed an interest in End of Life Care for people with Dementia while involved in the REACH project. Currently working as a Learning and Development Officer for the Dementia Services Development Centre (Iris Murdoch centre) which involves
delivering education and training on various topics as well as supporting architects carrying out
Design Audits for accreditation.


Afternoon Workshops

Mary Atkinson
Story Massage.
Mary Atkinson is an award-winning therapist and author. She is co-founder of the Story Massage Programme with Sandra Hooper. Story Massage combines the benefits of positive, nurturing touch with the creativity of storytelling. It is used widely in settings including hospices and care homes as a gentle way of helping people of all ages and abilities to experience connection and relaxation.

Judith Dandy
Arranging a Dementia Friendly Funeral / The Role of the Funeral in helping someone with dementia adjust to loss.
Judith Dandy was previously a social worker in adult services. Her research at university studied bereavement, grief and assimilation of loss, and she applied this understanding throughout her work in hospital and community settings. She began to be very interested in funerals, in particular in helping people to acknowledge their loss, honour the life lived and draw together as community to support one another. She established her own funeral business (Dandelion Farewells) in January 2015, achieving full qualifications as a funeral director in 2017.

Helen Evans
Helping someone with dementia manage a bereavement.
Helen is Head of Education at St. Wilfrid’s Hospice Chichester where she has been for over ten years but in a clinical nurse specialist role as well. Prior to this Helen has an extensive background in oncology predominantly in London in a variety of roles including research, management and higher education. Helens MSc is in research methodology in health care.

LouLou Morris
Material Memories: cloth as story prompt.
Anna Chaplaincy supports the spirituality of older people and those living with dementia. We offer a spiritual befriending service for people of any faith or none. We do not preach or proselytise, but offer a compassionate presence.


In conjunction with St Wilfrid's Hospice, Chichester.





Contact us:
01243 816389